CKD mineral and bone disorder


Coordinator
D. Haffner

Board Members
S. Bakkaloglu
R. Shroff
J.Groothoff
J. Bacchetta

Liaison ESPN Registry: M.Bonthuis
Liaison Council: A. Jankauskiene
Liaison ERA-EDTA: J. Bacchetta
Liaison ESCAPE network/4C-Study: Franz Schaefer 

Members

Program:

CME activity :

During in ESPN Porto 2014, CKD-MBD Master class

Proposed projects/activities :

1.   Educational material for the ESPN website.

2.   To develop European guidelines for the ³Assessment and treatment of CKD-MBD in children². In collaboration with EPDWG, that wrote the first European guidelines for children on dialysis some years ago.

- Guidelines for all CKD stages (before and after transplantation).

- Guidelines on ³dietetic management in children with CKD²

 

Planned observational studies :

1.    Impact of substitution of vitamin D in case of low vitamin D levels on markers of CKD-MBD, the immune system and iron homeostasis “click here to see the study protocol”

2.   New non-invasive diagnostic tools in CKD-MBD (biomarkers and imaging)

3.    New strategies in hyperphosphatemia management (dietary and P binder aspects)

 

Registry activities :

PPediatric   European registry of CKD-MBD in pediatric CKD patients covering the   full range of CKD (stage 2-5d). This will be done in close collaboration   with pre-existing registries and observational studies, e.g. ESPN-ERA-EDTA-registry and the 4C-study.

CME CKD-MBD presented at the ESPN meeting in Porto 2014

You can reach CME credit ESPN WG presentations from ESPN members area!

Guidelines for diagnosis and management of CKD-MBD in children

KDOQI Clinical Practice Guidelines for Bone Metabolism and Disease in Children With Chronic Kidney Disease 

KDIGO Guideline for Chronic Kidney Disease-Mineral and Bone Disorder (CKD-MBD)

European Pediatric Dialysis Working Group (EPDWG)

Guideline: Prevention and treatment of renal osteodystrophy in children on chronic renal failure: European guidelines; Pediatr Nephrol.

2006 Feb;21(2):151-9. Epub 2005 Oct 25

NICE guideline from the National Institute for Health and Care: Hyperphosphataemia in chronic kidney disease: Management of hyperphosphataemia in patients with stage 4 or 5 chronic kidney disease

CKD and MBD Working Group report September,2014

CKD and MBD Education Officer May, 2015

CKD and MBD Working Group report , August  2015

Minutes Brussels meeting of the CKD-MBD WG

CKD and MBD Working Group report, January  2017

CKD and MBD Working Group report, September  2017

CKD and MBD Working Group report, April 2019

Minutes Glasgow meeting of the CKD-MBD WG

CKD and MBD Working Group report, February  2018

The vitamin D guidelines

Clinical Practice Recommendations for NATIVE vitamin D

Clinical Practice Recommendations for native vitamin D treatment - Supplemental Tables

Clinical Practice Recommendations for native vitamin D treatment - Tables

Clinical Practice Recommendations for ACTIVE vitamin D

Clinical Practice Recommendations for treatment with active vitamin D analogues - Tables

Clinical Practice Recommendations for ACTIVE D - Supplemental Tables

Guideline: Growth hormone treatment 1 | 2

  •  The aim of the Society is to promote research knowledge of paediatric nephrology through teaching, scientific meetings and other methods, for the benefit of children with renal disease.

  •  World Kidney Day activities in ESPN Centres

  • ESPN Research Grant 2014 ; the call is closed & the results were announced at ESPN General Assembly Meeting in Porto.

  • If you wish to join the PEDNEPH forum then e mail your details to pedneph-request@lists.uchicago.edu

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