Idiopathic Nephrotic Syndrome


Idiopathic Nephrotic Syndrome Working Group

Coordinator
M. Vivarelli


Board Members
L. Peruzzi
J. Vande Walle
C. Pecoraro
S. Mir

Members

Liaison Council: C. Pecoraro
Liaison ERA-EDTA: G. Deschênes

·         Liason’s

Liaison Council: D. Bockenhauer
Liaison ERA-EDTA: G. Deschênes

·         CME Leader G.Deschênes

·         Program

Queries on European practices according to different countries (first flare, steroid resistant, rituximab, steroid dependency)

Common European guidelines : Suggestion and discussion

List of the current therapeutic trials and promotion-coordination of new prospective therapeutic trials

Relationships with patients associations

Planned meeting during ESPN Scientific meeting in Glasgow 2017: call for lecture proposals

Idiopathic Nephrotic Syndrome Working Group Report , September 2015
Idiopathic Nephrotic Syndrome Working Group Report , September 2016

Idiopathic Nephrotic Syndrome Working Group 2016 Activities

1) A questionnaire on vaccinations: what members advise their patients to do regarding vaccinations and the risk of relapse, if in their experience relapse happens or not, if they routinely check for specific antibodies and have ever noted any abnormalities both at onset and further on with concomitant immunosuppression.

2) A expanded questionnaire on rituximab, doses, frequency, B cell reconstitution, concomitant immunosuppression, side effects. 

3) A prospective project of assessing total serum IgG, IgA and IgM in patients with INS at onset, during immunosuppression and before and after rituximab infusion.

Idiopathic Nephrotic Syndrome Working Group 2017 Activities

1st International Seminar on the Epidemiology of Idiopathic Nephrotic Syndrom (INS) 
Paris, France
19 May 2017 
Invitation Letter 
Website

  •  The aim of the Society is to promote research knowledge of paediatric nephrology through teaching, scientific meetings and other methods, for the benefit of children with renal disease.

  •  World Kidney Day activities in ESPN Centres

  • ESPN Research Grant 2014 ; the call is closed & the results were announced at ESPN General Assembly Meeting in Porto.

  • If you wish to join the PEDNEPH forum then e mail your details to pedneph-request@lists.uchicago.edu

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