Idiopathic Nephrotic Syndrome
Idiopathic Nephrotic Syndrome Working Group
Liaison Council: C. Pecoraro
Liaison Council: D. Bockenhauer
· CME Leader G.Deschênes
Queries on European practices according to different countries (first flare, steroid resistant, rituximab, steroid dependency)
Common European guidelines : Suggestion and discussion
List of the current therapeutic trials and promotion-coordination of new prospective therapeutic trials
Relationships with patients associations
Idiopathic Nephrotic Syndrome Working Group 2016 Activities
1) A questionnaire on vaccinations: what members advise their patients to do regarding vaccinations and the risk of relapse, if in their experience relapse happens or not, if they routinely check for specific antibodies and have ever noted any abnormalities both at onset and further on with concomitant immunosuppression.
2) A expanded questionnaire on rituximab, doses, frequency, B cell reconstitution, concomitant immunosuppression, side effects.
3) A prospective project of assessing total serum IgG, IgA and IgM in patients with INS at onset, during immunosuppression and before and after rituximab infusion.
The aim of the Society is to promote research knowledge of paediatric nephrology through teaching, scientific meetings and other methods, for the benefit of children with renal disease.
World Kidney Day activities in ESPN Centres
ESPN Research Grant 2014 ; the call is closed & the results were announced at ESPN General Assembly Meeting in Porto.
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